It's no secret…All things work together for good when on the path for greatness.
Today was a miserable day. I had to have a tube shoved down my nose twice. The first time it to test my reflux. The second time is for this machine I’m wearing. It records everything and shows if i have overactive acid reflux. This thing is so uncomfortable. I cant deal. I’m just going to lay down.
Live Free. Pray. Drink Wine.
Saturday! Today was a great day thanks to my aunt. After a long week of testing my aunt got me out the hotel and we went exploring. I like driving around. That’s my mind clearing hobby. Who doesnt like a good outing?
We went to the nail salon first. Something I needed like a fish needs water. Im telling you! These toes looked like they were best friends with bigfoot. I feel like a female again! The first shop we went to was rude. Didnt even acknowledge people walking through the door nor know how long the wait was. So we left and went to another. I like that place. Made you feel like family.
After we went to Plato’s Closet. For those that dont know what PC is, it is a buy and sell clothing shop. I bought a lot of active wear for the low! Plus it was on sale. Who doesnt love sales? Lol.
Ended my day back at the hotel to eat my leftover Olive Garden and ColdStone icecream. Yum! So good, so good lol.
Today was much needed. My thoughts on eveything have been very positive but I still worry. I still get my zoned out moments where I go into my what ifs. It’s nice having your mind and atmosphere taken away from all that. Well I have an early start in the morning. Guess I should get some sleep.
Live Free. Pray. Drink Wine.
So today was yet another short day. Was late for another appointment but it was good because they were behind anyway. The day started off with my Esophagus Scan. They are checking to see if my esophagus could be the problem of my respiratory issues. The doctors put me on a table that rotated forward and backwards. While they took pictures they had me drink yet another concoction. This one made my stomach queasy but it’s ok. After that i just had labs.
The day was really good. I went back to the hotel and recharged my oxygen tank and took a nap. A much needed nap too.
With my aunts encouragement, i walked around the mall. Y’all I don’t go anywhere at home. Im not the one to be the center of attention so i don’t go out much. I tend to get looked at like im some sort of alien. Today though I put that aside and went walking. The transplant doctors want me to walk as much as possible so that’s what my mission is.
My trip to the mall was good. Even did a little at my shopping. I ended with a trip to Olive Garden. Oh how I love me dinee Olive Garden. Seafood Alfredo was my selection tonight. It was so good! Y’all😍💜. The creaminess of the alfredo sauce with that good ole shrimp and scallops! 🙌🏾. I am so satisfied. Now it’s time to sleep. Yes. Ya girl has the itis. Lmao! With that being said… remember life is too short.
Live Free. Pray. Drink Wine.
Today I just had my heart catheter appointment. This procedure makes me so nervous. The thought alone of being awake while a doctor puts a tube/camera in your neck to your heart. You cant tell me that wouldn’t make anyone nervous. Through all the nervousness the Lord blessed me yet again today. Got to the room and was set up to begin when my doctor came in to say I didnt have to have the procedure. Y’all God is good. I went and celebrated with food! I was so hungry lol.
Then another blessing was getting an appointment that I had to have switched to today instead of Monday. On Monday the appointment conflicted with another and I was so worried and stressing how things would work out. In the end, it has all worked out. Today was a day full of blessings.
Live Free. Pray. Drink Wine.
Day 3! Today started off late. Arrive to my Rad CT Abdomen/ Pelvic Scan 10 min late. My fault. I had to take a breathing treatment. We made it there safely so I’m happy with that. That scan was something else I tell yea. I had to drink my contrast. It was tasteless but it makes you all hot like your on fire and makes you feel like you wetting yourself but your not. Next up on the schedule was a consultation with my nurse. That went very good. A lot of things I won’t be ablento eat anymore. Like my oysters and i can only have cooked sushi. I only eat California Rolls and shrimp sushi anyway. So im happy. I cant eat at buffets (not that i really do it anyway), salads or fruit from a restaurant. I also can not what so ever get sick. Mask wearing for me during the winter.
Once I was finished I ended up being extra early for my Pharmacist Class. So to kill time I played my game. The Pharmacist class was only 5 minutes long! Like wow. He went through that PowerPoint fast as heck. Hey! Im not compalin lol.
After that I went to get my shots. Yes shots. I had to get a tetanus, flu, and pneumonia shot. I dislike shots but I took them like a champ💪🏾.
My next appointment I’m not going to lie…I went to sleep! Lol. I had to have nuclear rad medicine put in through an iv. This helps see my lungs better for pictures and how they react to eachother. So I layed there in a dem lit room with warm blankets. Heck yea I knocked out lol.
My last appointment was just me getting an oximeter machine. I have to wear it for the night and it records how i slept. Overall today was a great day. Im extremely tired though so I’m about to crash!
Live Free. Pray. Drink Wine.
Day 2! Day 2 starts off with the psychiatrist. Once i got there i had to take multiple surveys. Surveys are so long! Thats why i avoid them, but these had me thinking hard about myself lol. I have a healthy mind considering everything ive been through. She says i have medically associated anxiety. Which is understandable. I also handle stress well but could use some more stress management tips. So she gave me a booklet to read.
Then the bone scan and EKG came next. Those were pretty quick. 5 to 10 minutes for each. The bone density scan i thought would be all extra but i just layed on a table and just the machine run over me. So no complaints there lol.
Finally I end with my Gynecology appointment. Gor the and waited just to find out I didn’t need to be there! Lol. Since I had a recent check up with my GYN, I didn’t need to be seen. I just have to have me records sent to them. Hey! Works for me! Overall the day was a very good day. Im eternally grateful for all the staff and doctors and nurses and even volunteers that work there. They make is easy and make you feel so comfortable.
Live Free. PRAY. Drink Wine
5:00 AM. Ive been up since five. Being up that early isn’t anything new but it felt like I had just went to sleep. No I hadn’t been up late lol. I went to sleep around 11. SMH. Don’t you just hate that.
Well anyway, first up was labs. 28 tubes,1 syringe, 3 sticks, and 2 veins later. Lol. Felt nothing but coldness once I was finished. Good thing they let us use their oxygen. Im completely grateful for that🙌🏾.
Once labs were over I headed over for my Cardiovascular Echo. That is just a ultrasound for my heart. Me being nosey i questioned the lady. Probably got on her nerves lol. During a part of the test I had to have contrast through an iv. Finding a vein for that is always great (yea right).
Following that I had meetings with my transplant social worker and pharmacist. Over 50 medications everyday post transplant. Thats a lot but im ready. I can handle it. Especially with my support system. Its all gonna be ok. Day 2 starts at 730 AM! Wish me luck.
Live Free. Pray. Drink Wine
Hey Y’all!!👋🏾
So things have been really been good and manageable (not so bad) these past few days. Physically im more energized and wanting to do more. Ive been in good spirits and have had so much positivity around me…who doesnt love that. More doctors appointments but as always…im a very healthy sick person.
Today i have really adulted. I paid my bills, made the necessary phone calls and cleaned up a little. Well as much as my lungs allow lol. Anyway, im recently having to change pxygen companies. Its so annoying. Hopefully the new company is more customer service oriented and equipment actually works. What company tells their clients “we want to send you to some other company ” because the client asks too many questions and their stuff doesn’t work. Unbelievable. I also hope everything is switched over to the new company before Sunday. I leave for Florida Sunday and I dont want anything to go wrong this time. Wishful thinking i know.
Wow it really is time for evaluation…i am really excited but nervous as well. The tests and the possibility of being told im not qualified is so nerve racking. Y’all pray for me. This is going to be a journey. A journey I’ll document everyday.
Remember
Live Free. Pray. Drink Wine.
Today was very interesting. I was able to get a lot done. I slept longer than i normally do. Maybe because I haven’t been getting a full night’s sleep. I’ve been falling asleep around 5 just for my internal alarm to wake me a few hours later. Then of course im not able to go back to sleep for one reason or another.
I also had my check up with my pulmonologist. Everything went good. Like always ima healthy sick person. However, this weight fluctuation is driving me crazy. Up and down, up and down. My weight has been more of a roller lately than my moods. I dislike taking steroids so much. This prednisone is the devil in disguise.
Anyways, once I left there I went to get yet another prescription from the pharmacy. This one for potassium. I was never the medicine taker, but now i have more pills than ever! Whatevers best i guess. After that i didn’t do much else. Just come home and relax. 11 days until evaluation week! Slowly but surely. Y’all pray for me.
Live Free. Pray. Drink Wine.
I use to think my biggest fear was heights lol. As i continue this look into myself i see my real fear is disappointment. Yep Disappointment. I have a fear of being disappointed, but my biggest fear is disappointing people. Letting the people i care about down. Letting the Lord down. Now I’ll have an added on fear of letting my donor and their family down. I still feel like i’m on the search to find my purpose. Anyone ever feel like that? Like your disappointing someone or yourself. Feel like your in a search for your purpose. I have so many things I want to do and so many interests. At times i feel like i went to school for the wrong thing, but then i realize i didnt. I realize this because my heart is still set on becoming an analyst. I have a dream but it’s the steps to make it as reality that are hazy. I’m in need of some serious tech help. I have a dream but at times want to do something else. I get indecisive.
I just have to keep believing it will all fall in line. He always answers just have to be aware when he does.
Live Free. Pray. Drink Wine.
MelanatedDreamChaser 